Wednesday, March 23, 2011

National multiple sclerosis monitoring system created
An expert working group is now reviewing studies from Canada and around the world, and will make its recommendations to the government. Aglukkaq said the government will pay for clinical trials if the expert group decides they're scientifically warranted.
"Canada has taken the lead in trying to get to the bottom of this," Vancouver neurologist Dr. Anthony Traboulsee, chair of the Canadian Network of MS Clinics, said at Wednesday's announcement.
Researchers are working as quickly as possible "to get the right answers for Canadians — not just what's being driven through the social media, but we need the truth," he said.
Traboulsee, director of the MS clinic at UBC Hospital, has seen complications in patients who have undergone surgery outside the country and received a stent — tiny, cage-like tubes or scaffolds that are sometimes used to keep veins open. "It irritates the skin, or the vein and often causes pain in the neck," he said. "The best care for dealing with those stents isn't really known."
But some patients have reported that their hands are warmer and their energy better.
"I hear a whole variety of things," Traboulsee said.
"Right now it's just a collection of people's experiences, which is important," he said. "But for the Canadian public, we need

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This slide shows the global prevalence of mult...Image via WikipediaGene Discovery That Increases Risk For Pediatric-Onset Multiple Sclerosis 
« Biomed Middle East
Canadians have one of the highest rates of Multiple Sclerosis (MS) in the world with approximately 1,000 new cases diagnosed each year. Primarily striking in adulthood, physicians and researchers with the Canadian Pediatric Demyelinating Diseases Network (CPDDN), a multi-institutional and multidisciplinary group, have found that MS is being increasingly diagnosed in children. A study by the CPDDN published in the journal Neurology, identifies a particular gene involved in the immune response that puts certain children at a higher risk of developing MS.
In children, an initial attack of demyelination (acquired demyelinating syndrome [ADS] in the central nervous system) often remains a single, isolated episode. However, in at least 20 % of children it represents...continue reading article

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Ottawa to set up national MS surveillance system

Joanna Smith Ottawa Bureau

The Conservative government is setting up a national surveillance system to better monitor the symptoms and treatment of multiple sclerosis across the country, the Star has learned. The Canadian Institute for Health Information will receive funding to work with MS research clinics nationwide to compile a database of symptoms and treatments for the debilitating disease and then...continue reading article

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Saturday, March 19, 2011

Health advice by Dr. Weiss: Yoga, the new “old” medicine
Naples Daily News (User story from NCHWebTeam)

There have been some associations of yoga with a boosting of the immune system as well as decreased cholesterol and triglycerides, which are the fats in the blood.
Other medical conditions. Less well studied but intriguing is the use of yoga for chronic medical conditions such as asthma, back pain, arthritis, insomnia, and multiple sclerosis. Yoga alone is not going to be curative for many chronic conditions but is a safe adjunct for generally accepted therapies. All the benefits above would help anyone with almost any disease, with little risk.
Memory and learning. Having focus while...Continue reading

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Saturday, March 12, 2011

Scotiabank MS Walk

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Multiple Sclerosis: T1-weighted MRI (post-cont...Image via WikipediaMarch 11, 2011 — The International Panel on the Diagnosis of Multiple Sclerosis (MS) has revised the McDonald Criteria for diagnosing the disease.
"The 2010 revisions to the McDonald Criteria will in some instances allow a more rapid diagnosis of MS, with equivalent or improved specificity and/or sensitivity compared with past criteria and will in many instances clarify and simplify the diagnostic process with fewer required MRI [magnetic resonance imaging] examinations," the panel states.
The McDonald Criteria, named for the chair of the original panel, the late neurologist W. Ian McDonald, MB, ChB, PhD, were originally issued in 2001 and updated in 2005. New data generated since 2005 led the panel to reconvene in May 2010 in Dublin, Ireland, to refine the criteria.
The revised criteria were published online March 8 in Annals of Neurology, just ahead of National MS Awareness Week (March 14-20). They are available online.
Corresponding author is Chris H. Polman MD, PhD, from the Department of Neurology at VU Medical Center, Amsterdam, the Netherlands.
What's Changed?
"One of the most dramatic changes is that for the very first time we are going to use a diagnostic criteria that will allow some patients to be diagnosed...Read More

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Friday, March 11, 2011

Celiac Disease More Prevalent in Multiple Sclerosis
March 10, 2011 — Celiac disease is more prevalent in patients with multiple sclerosis (MS) and their close relatives than in the general population, clinicians from Spain report.
Increased efforts aimed at early detection and dietary treatment of celiac disease among MS patients with tissue IgA–antitransglutaminase-2 antibodies "are advisable," they conclude in a report published online March 7 in BMC Neurology.
"We have found a prevalence of celiac disease among MS patients that is 5 to 10 more here

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Thursday, March 10, 2011

MS Society of Canada - News in Research
On March 9, 2011, Health Canada approved Gilenya™ (fingolimod) capsules, the first oral disease-modifying therapy developed for relapsing-remitting MS.
Gilenya (prounounced Jil-EN-ee-ah) has been approved for use in people who have tried one or more MS therapies, but are unresponsive or intolerant to them. It is indicated for use as a monotherapy for the treatment of people with the relapsing-remitting form of MS to reduce the frequency of clinical exacerbations (relapses) and to delay the progression of physical disability. Health Canada’s approval is based on results from two large-scale placebo-controlled clinical trials, each with over 1,200 participants.
Gilenya is a new class of medication called a sphingosine 1-phosphate receptor modulator, which is believed to act by retaining certain white blood cells (lymphocytes) in the lymph nodes, thereby preventing those cells from crossing the blood-brain barrier into the central nervous system (CNS). Preventing the entry of these cells into the CNS reduces inflammatory damage to the nerve cells.
The medication will be available in Canadian pharmacies by...Read More

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Wednesday, March 9, 2011

A human brain showing frontotemporal lobar deg...Image via Wikipedia

Deep brain stimulation for tremor caused by multiple sclerosis

The stimulation affects tremor by altering the activity in the area of the brain that controls it. The procedure does not destroy any brain tissue, and stimulation can be stopped at any time by...Read More
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Photomicrograph of a demyelinating MS-Lesion. ...Image via Wikipedia
Vascular brain disorder misdiagnosed as multiple sclerosis | e! Science News
A devastating vascular disorder of the brain called CADASIL, which strikes young adults and leads to early dementia, often is misdiagnosed as multiple sclerosis, Loyola University Health System researchers report. CADASIL occurs when thickening of blood vessel walls blocks blood flow in the brain. The early manifestation is migraine headaches, progressing to...Click here to read article

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Tuesday, March 8, 2011

CCSVI BEEN THERE DONE THAT 3/7/2011 - RaeFlectionsMe Radio | Internet Radio | Blog Talk Radio
Be sure to listen...People with Multiple Sclerosis that have gone through the "Liberation" treatment.

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Stem Cell Therapeutics Corp. Announces Commencement of MS Research Program
Stem Cell Therapeutics Corp. (TSX VENTURE:SSS) ("SCT" or the "Company") is pleased to announce today that the Multiple Sclerosis (MS) phase II clinical trial is proceeding. This program will be executed by the University of Calgary utilizing funding from the Stem Cell Network, based in Ottawa. The financial commitment of SCT is limited...Click here to read article
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Monday, March 7, 2011

Two provinces moving on follow-up care for MS liberation therapy

Yves Savoie, president of the MS Society of Canada, said people with the disease are frustrated about the lack of guidelines. He said Ontario’s initiative to develop standards for the best follow-up care will fill a much-needed gap.
“It will fill a void, not only for Ontario but... Click her to Read Article

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Sunday, March 6, 2011

MSLOL Radio- CCSVI Been There Done That 3/7/2011 - RaeFlectionsMe Radio | Internet Radio | Blog Talk Radio
Join us on Monday March 7th (8pm EST) for a conversation with a number of people who have had the Chronic Cerebro-Spinal Venous Insufficiency Surgery. We will meet those who swear by it and those who don't. It's going to be straight up candid conversation? No talk about the contentious stuff or efforts to coerce. Just a personal conversation with those who have a CCSVI tale to tell. So mark your calendars! Monday, March 7th at 8pm EST.          
Click this link for talk radio page

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Alberta doctors advised how to treat MS liberation patients | Science Magazine News
Doctors are being advised to make decisions based on individual cases.
Some liberation patients have complications after they return and don't have proper medical records.
Read Article Here

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Movement therapy machine enhances physio patients' treatment
Edson Leader
"The clients that we have on (the bike) right now are stroke clients, Multiple Sclerosis clients, a spinal cord injury client and older clients. Once they start getting the movement back in their legs and arms – and the machine assists them if they ...

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Tuesday, March 1, 2011

Map of CanadaImage via Wikipedia
New CCSVI Online Resource!

The MS Society of Canada is pleased to announce that today we are launching a new online resource to provide people touched by MS with information on CCSVI. This public resource is designed to meet the information needs of those who want to learn more about the condition including those who may be seeking CCSVI-related procedures.

The objective of the website is to provide timely, credible and relevant information on CCSVI that supports a person’s right to make their own choices regarding treatment of their MS.
It will also be a space that engages those who are interested in CCSVI in genuine dialogue, and allows people to share their personal story, experience or perspective related to CCSVI.
We invite you to visit and encourage you to pass along the web address to those looking for more information on CCSVI and MS. The site will also be well integrated with the MS Society’s main website at
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