Monday, November 29, 2010

Unproven, out-of-country treatments get indirect subsidies
Tom Blackwell, National Post · Monday, Nov. 29, 2010

The federal government is indirectly subsidizing a variety of sometimes unproven medical treatments in other countries, as multiple sclerosis sufferers and other patients claim thousands of dollars in medical tax credits for foreign health-care costs.


Read more: http://www.nationalpost.com/news/Unproven+country+treatments+indirect+subsidies/3896827/story.html#ixzz16hTLPf53
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Sunday, November 28, 2010

Multiple Sclerosis: What if I do not have CCSVI? Worry not, my friends!
I read a research paper once about FIBRIN in the blood and how it increases significantly when under stress.
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Wednesday, November 24, 2010

The veins of the neck, viewed from the front.Image via WikipediaCBC News - Nfld. & Labrador - N.L. Zamboni study enrolling MS patients
Health Minister Jerome Kennedy said Wednesday that the study of the treatment, based on work by Italian surgeon Paolo Zamboni, has been reviewed and approved by the Memorial University of Newfoundland medical school's human-investigations committee.

Read more: http://www.cbc.ca/canada/newfoundland-labrador/story/2010/11/24/nl-ms-study-1124.html#ixzz16GD9h8ba


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Monday, November 22, 2010

MS mom grabs 'Holy Grail'
The recent death of an Ontario man who travelled to Costa Rica for the liberation procedure and subsequently developed a fatal blood clot has not deterred Maheu-Gauthier, whose condition has been steadily deteriorating over the years.

Read more: http://www.windsorstar.com/health/grabs+Holy+Grail/3865035/story.html#ixzz161yvb4yH


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Friday, November 19, 2010

After Mostic paid $30,000 US to go to Costa Rica for treatment in late June, he was operated on three times to have a mesh stent inserted to prop open a vein in his neck.

Read more: http://www.cbc.ca/health/story/2010/11/18/multiple-sclerosis-vein-death-costa-rica-mostic.html?ref=rss#ixzz15ktNmd3B

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Wednesday, November 10, 2010


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Thursday, November 4, 2010

Wii's logoImage via Wikipedia
Multiple sclerosis patients work out with robotic devices and video games aimed at improving mobility - latimes.com
Wii's motion-sensitive electronic games show some promise in rehabilitating adults with MS, according to British physiotherapist Colin Green. "I have used the Wii system with various clients with MS with some success, in particular in... Read more

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Tuesday, November 2, 2010

A new treatment for MS
Tue, Nov 02, 2010
Madam, – As the national organisation providing information and support to the MS community, we share Godfrey Augustt’s interest (October 11th) in chronic cerebro-spinal venous insufficiency (CCSVI). Over the years we have witnessed many potential and experimental treatments for MS come into focus. While not all of these become significant treatment options, they all play a role in advancing research and improving our understanding of MS.
CCSVI is in the initial stages of research. Dr Paolo Zamboni’s study showed very strong evidence to suggest a link between the narrowing of veins and MS. However, subsequent research conducted, using more standard protocols, has not showed the same results. Two German and one Swedish study indicated little statistical difference between the presence of narrow veins among those with MS and those without.
The research now available proves only one thing; that more research is needed.
There are 8,000 people with MS in Ireland and each uses various treatments, interventions and techniques to manage MS. We believe in free choice and our role is to provide enough information for people to make their own decisions about their treatment options. We encourage people to read, research and speak to their healthcare team. However, we do encourage a person to be cautious about any treatment or technique that has not yet been proven to be safe or effective in the treatment of MS. At all times we want to protect the health and well-being of people with MS and their families.
In relation to Mr Augustt’s assertion that MS Societies receive “huge amounts of money” to advertise pharmaceutical products, I can say that this is not the case in MS Ireland. Under the Irish Pharmaceutical Healthcare Association’s guidelines, we cannot advertise products on a pharmaceutical’s behalf. We do not promote any pharmaceutical other than giving standard information on all products to facilitate the decision making process of people with MS.
The contribution we get from the pharmaceuticals, which is all unrestricted, accounts for 4 per cent of our annual income. It is spent on our core services such as our information services, care centres, home visit services and counselling. Our website www.ms-society.ie carries further information about CCSVI. – Yours, etc,
ANNE WINSLOW,
Chief Executive,
Multiple Sclerosis Ireland,
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