Saturday, September 25, 2010

MS doctors attacked for their skepticism -
OTTAWA—Mark Freedman was unprepared for the onslaught of hate.
There were the angry letters and phone calls. There were patients who told him he was fired, and others who accused him of conspiring with drug companies to keep them ill in the name of profit. There was the vitriol being poured into online forums, where he was called a pompous windbag with the bedside manner of Adolf Hitler, a pill pusher and, even, the “King of all Turds”.
He had spent a quarter century searching for a cure for multiple sclerosis, spurred on by being a daily witness to the fear and pain of his patients, but when Freedman urged caution over a proposed new theory of the debilitating disease — something he says he did in the best interest of patients — he was labelled more here
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Friday, September 24, 2010

Multiple Sclerosis Society of Canada - National News Releases

Donors lead the way in endMS campaign

Toronto, September 23, 2010 –Since the launch of the endMS capital campaign two years ago, donors from across the country have contributed more than $49.2 million to fund MS research activities and establish the endMS Research and Training Network, a nationwide initiative formed to accelerate discovery in Canadian MS research.
“Through the endMS campaign, we’ve witnessed amazing acts of generosity and donations to the MS Society from Canadians across the country,” says Yves Savoie, president and CEO of the Multiple Sclerosis Society of Canada. “These contributions have undoubtedly enhanced and accelerated the future of MS research.”
endMS donors come from different backgrounds from coast-to-coast but they share a common bond: they have MS or have a family member or loved one who is living with the disease. Their commitment to the $60 million national campaign ensures continued progress and Click here to read more

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Thursday, September 23, 2010

CCSVI Blood Flow Study
False Creek Healthcare Centre is conducting a study of blood vessel differences in people with Multiple Sclerosis compared to individuals without Multiple Sclerosis. We will be accepting 200 patients for the Study, 100 individuals with Multiple Sclerosis and 100 patients who do not have Multiple Sclerosis. We will be accepting applications until Monday, September 27, 5pm.
For more information click on this link
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AFMC supports research to determine link between blood vessel anomalies and multiple sclerosis
23. September 2010 07:26
The Association of Faculties of Medicine of Canada (AFMC), along with other organizations in Canada including the Multiple Sclerosis Society of Canada and the Canadian Institutes for Health Research, is in strong support of rigorous scientific research to determine the possible link between blood vessel anomalies and multiple sclerosis and the potential benefits of surgical intervention to relieve its symptoms. Canadian health researchers in all areas (population, biomedical and clinical) are already participating in a number of research studies on multiple sclerosis and the chronic cerebrospinal venous insufficiency hypothesis.
The decision to advance research on interventions to clinical trials is not one to be taken lightly; clinical trials are expensive, labour intensive, and carry certain risks. The decision to launch a clinical intervention trial must be based on sound pre-trial investigation. The AFMC supports the recommendation of the Canadian Institutes of Health Research and the focus of current research in Canada to establish the appropriate parameters, based on evidence from MS and non-MS patients, to proceed with interventional research.
The Association of Faculties of Medicine of Canada (AFMC) provides national and international leadership in health education, research and clinical care to meet the needs of all Canadians.
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Tuesday, September 21, 2010

MS Society: Delays ensure good science
Yves Savoie, president and CEO of the MS Society of Canada, responds as MS patients mobilize to pressure the government to approve experimental treatment in Canada.
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CBC News - Manitoba - MS patients rally at Manitoba legislature
Patients with multiple sclerosis staged a rally at the Manitoba legislature Monday to lobby for what some say is still an unproven treatment.
About 60 people called on the provincial government to
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Leeds-Grenville Member of Parliament, Gord BrownImage via Wikipedia

Tory MP: MS liberation treatment works

Last Updated: September 20, 2010 5:58pm
OTTAWA – A Tory MP says it’s clear the controversial liberation treatment works on Multiple Sclerosis, contradicting the health minister’s decision earlier this month to gather more research before moving to a clinical trial.
“This procedure works,” Gord Brown, the Conservative MP for the Ottawa-area Leeds-Grenville riding, told a rally on Parliament Hill.
“We need to get all the premiers to approve this procedure.” In an interview later, Brown said he and some of his colleagues are going to continue to push within caucus to see the treatment approved.
“There are so many people who are receiving this treatment and it appears to be working. I don’t profess to be a medical doctor but we’re seeing people who could not walk, who could hardly move, who were in pain, find that once they have the treatment, that they didn’t have those problems any longer,” he said.
Earlier this month, Health Minister Leona Aglukkaq said Canada will move to a clinical trial only after finishing seven studies, that started in July, looking at the link between blocked neck veins and MS. She said there’s no evidence yet to show the condition, known as CCSVI, causes MS.
But many MS sufferers who have had the treatment say they felt better almost right away and that’s all the proof some people need.
About 150 to 200 people gathered in front of the Peace Tower Monday with signs reading “go for the jugular” and “the treated are the evidence.” They want to see a clinical trial on the liberation treatment Italian Dr. Paolo Zamboni pioneered. The procedure’s available outside Canada, but patients have to cover their travel and medical costs.
Beth Fraser, a Brockville, Ont., resident who travelled to Ottawa for the rally, said the liberation treatment is the first exciting treatment she’s heard of in the 18 years since she was diagnosed with MS, but she can’t afford to pay for it.
Sitting on a red scooter because she can no longer walk, Fraser said opening veins in the neck to ease a theoretical iron build-up in the brain is a simpler solution than something like working with stem cells, another area of research.
“Isn’t it dangerous to be sitting here with a disease where you’re deteriorating day by day, where you’re losing something day by day?” she said.
“I’m dying right now. So you know what? If I die on the (operating) table, so what?” Aglukkaq’s spokesman says they hope to have the results of the seven liberation treatment studies in months, not years.
“We are accelerating the development of a protocol for a pan-Canadian clinical trial,” Tim Vail wrote in an e-mail to QMI Agency.
“Clinical trials will happen in Canada if and when the research supports it.” Liberal health critic Ujjal Dosanjh says the government’s waiting to react rather than being proactive.
“The scientific community, the medical community needs to know that this government is proactively concerned and will push (them). Then they don’t even need the push because they know the government is interested, they know the government will provide the resources.” Two provinces have so far moved to fund research, with Saskatchewan offering money for a clinical trial and Newfoundland and Labrador funding an observation study to look at whether patients’ conditions improve after they have the procedure outside Canada.
NDP health critic Megan Leslie agrees the issue needs federal leadership.
“When these seven reports come out, how long is this going to take? When is this going to happen? When is there going to be a decision?” she said.
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Sunday, September 19, 2010

MULTIPLE SCLEROSIS: Few provinces agree to study controversial liberation therapy
By JEFF CUMMINGS, Edmonton Sun
When provincial and federal health ministers gathered in Newfoundland and Labrador earlier this week, liberation therapy was near the top of their agenda.
Governments across the country are under enormous pressure from MS patients and their families to fund the controversial therapy, but they argue that there hasn’t been enough research to know if it’s safe or effective.
The MS societies of Canada and the U.S. have funded seven studies, worth $2.4 million, examining the relationship between the disease and the treatment, which it hopes will determine whether clinical trials are justified.
Meanwhile, the Newfoundland and Labrador government has funded an “observational study” of people who’ve sought the treatment on their own.
So far, Saskatchewan and Prince Edward Island are the only provinces to say they’ll help fund a clinical trial.
However, cautioned Saskatchewan Health Minister Don McMorris, “more has to be done to find evidence for clinical trials.”
Alberta Health Minster Gene Zwozdesky said he’s created a committee to examine all the data as it comes in, but stopped short of committing to funding trials.
“This data is being collected to address the safety and efficacy of the (treatment). We must see that first,” he said.
Zwozdesky added that the results of the preliminary studies are expected “within months, not years.”

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Saturday, September 18, 2010

Manitoba Province within Canada.Image via Wikipedia
MB Health Minister to Speak at Liberation Day II: Noon, Monday Sept. 20, Manitoba Legislature
Posted on September 18, 2010 by duncanthornton
In conjunction with CCSVI advocates groups in other provinces, CCSVI Manitoba will be sponsoring a 2nd Liberation Day Rally outside the Manitoba Legislature - Noon, Monday September 20th. Along with MS patients who have had the liberation treatment outside the country – and some who are still seeking access.
Political leaders who will be speaking include:
* Hon. Theresa Oswald, Manitoba Minister of Health
* Hugh McFadden, Leader of the Progressive Conservative Party of Manitoba
* Hon. Jon Gerrard, Leader of the Liberal Party of Manitoba
Along with the fundamental call to give people with MS equal access to medical care to diagnose and treat blocked veins, this 2nd Liberation Day will have two special themes:
* Remembering those who were lost. We will be honouring all those MS sufferers who lost their lives to this illness since the discovery of CCSVI.
* Children whose parents live with MS will speak about the impact that MS has had on their lives: the childhoods lost.
Remember that the legislature is wheelchair accessible, as are the washrooms inside. Tell everyone; bring everyone.
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TheSpec - Mohawk dean of health looks to India for MS lifeline
The dean of health sciences at Mohawk College is going to India in November for the controversial liberation treatment in hopes of getting back her career and life ravaged by multiple sclerosis.
Nandini Daljit is joining the growing ranks of Canadian MS patients travelling abroad for the unproven treatment despite pleas from read more and see video
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Friday, September 17, 2010

Canadian scientists find gene that could lead to new treatments for MS

EDMONTON — A surprise discovery by a young Edmonton researcher at the University of Alberta has opened a new area of research around multiple sclerosis.

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2nd Annual A&W Cruisin’ for a Cause Day Raises over $700,000 for the Multiple Sclerosis Society of Canada
VANCOUVER, BC – A&W Food Services of Canada Inc. (TSE: AW.UN) is proud to announce that its second annual Cruisin’ for a Cause fundraiser held on August 26 nearly doubled last year’s total and raised over $700,000 for the Multiple Sclerosis Society of Canada.
“A&W would like to thank all its customers, staff, classic car owners, car clubs and other supporters for helping to make the 2nd Annual Cruisin’ for a Cause event such a huge success,” said Paul Hollands, President and CEO, A&W Food Services of Canada Inc. “I am very proud of both the A&W and Multiple Sclerosis Society teams’ passion and commitment to this important cause, and hope our partnership can help to make a difference in the lives of the 55,000 to 75,000 Canadians and their families living with MS.”
“For the second year in a row, A&W has demonstrated its steadfast support of the MS Society’s mission to be a leader in finding a cure and enhance the quality of life for people affected by MS,” says Yves Savoie, President and CEO of the MS Society of Canada. “The overwhelming success of Cruisin’ for a Cause is a testament to the generosity and support of A&W employees and customers. We are proud to partner with A&W, and look forward to continued collaboration in the movement to end MS.”
More than 700 A&W restaurants across Canada helped raise funds through the sale of classic car cut-outs, donation boxes and by donating $1 from every Teen Burger® sold on August 26. Cruisin’ for a Cause (or Journée Rétro as it is known in Quebec) raised both funds and awareness of MS through a variety of events including classic car gatherings, retro music, car hop service and car hop relay races, and Great A&W Root Bear® visits.
Last year, the inaugural national campaign was able to raise $400,000 for the MS Society of Canada and brought awareness to a disease that is typically diagnosed between the ages of 15 and 40, the prime income and family-building years. Awareness reached new heights this year as #cruisinforacause became a top trending topic on Twitter in Canada on August 26. Facebook also saw over 11,000 people RSVP to one of over 700 Cruisin’ events across the country.
Canada has one of the highest incidence rates of multiple sclerosis in the world. Funds raised through the campaign support research and services for people with MS and their families. Multiple sclerosis is the most common neurological disease of young adults in Canada.
Cruisin’ for a Cause is a fundraising event affiliated with A&W’s national Cruisin’ the Dub program, which began over ten years ago at a grassroots level in various communities. It was created by baby boomer classic car enthusiasts who enjoyed gathering at A&W to share a passion for their vintage autos. The popular fundraiser creates an opportunity for Canadian baby boomers who grew up enjoying warm summer evenings in their cars at A&W drive-ins – often with the radio blaring and trays of Teen® burgers hand-made onion rings and icy cold A&W Root Beer® delivered by car hops – to revisit those fond memories, enjoy classic, muscle and hot rod cars while supporting the Multiple Sclerosis Society of Canada.
A&W Food Services of Canada Inc. is 100 per cent Canadian owned and is one of the strongest brand names in the Canadian foodservice industry. A&W is the nation's second largest hamburger restaurant company with 716 locations coast-to-coast. A&W Restaurants feature famous trade-marked menu items such as The Burger Family®, Chubby Chicken®, and A&W Root Beer®. For more information, please visit
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Thursday, September 16, 2010

Multiple Sclerosis Society of Canada 
National News Releases
Toronto, Ontario - September 16, 2010 – The Multiple Sclerosis Society of Canada board of directors unanimously approved a motion to reserve $1 million for a chronic cerebrospinal venous insufficiency (CCSVI) and MS pan-Canadian therapeutic clinical trial. The funding will be set aside so that an immediate infusion of funding will be available when such a trial is developed and approved.
"We want to hit the ground running when a therapeutic trial is warranted and approved," says Yves Savoie, president and CEO of the MS Society. "Ensuring funds are available to support a Canadian trial more here
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Wednesday, September 15, 2010

The White HouseImage by cliff1066™ via FlickrThe Associated Press: Book: White House party crasher says she has MS
Michaele Salahi, who gained notoriety with her husband by crashing a glitzy White House state dinner, says in a new book that she suffers from multiple sclerosis, a potentially debilitating disease that she says she has kept secret for years. read article
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Monday, September 13, 2010

MS trials: Should your province fund them? - Point of View
The ministers could be forced to choose between good medicine and good politics as desperate patients press politicians to make the treatments available in Canada. read more
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Logo used by CBC Television from 2001-2009. Pr...Image via Wikipediaread more
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Relief of Newfoundland and Labrador, CanadaImage via Wikipedia
N.L. to fund study of controversial MS procedure
Newfoundland and Labrador plans to fund a study to observe how the controversial "liberation treatment" affects patients with multiple sclerosis, the government announced Monday.
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Saturday, September 11, 2010

MP fights battle for MS sufferers across Canada
Liberal MP Kirsty Duncan's interest in MS is a deeply personal one — her cousin was diagnosed with the debilitating disease five years ago — and it's a cause she has made a focus of her work as a parliamentarian.
"People say I'm fighting for one person," Duncan said in an interview. "I'm fighting for 75,000 Canadians  and many don't have a voice
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Friday, September 10, 2010

A message from the President and CEO, Yves Savoie 
Friday, September 10, 2010
Dear members of the MS community:
In the past two weeks, a great deal of coverage on CCSVI and MS has been generated.  I’ve had the opportunity to speak with many of you on this very important topic. I have carefully listened to those of you who have expressed disappointment and anger at what has been perceived to be the MS Society of Canada’s negative stance on CCSVI. I am personally writing to you so that the views of the MS Society of Canada can be presented unfiltered.Read more
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Despite Multiple SclerosisImage by mtsofan via Flickr
LDN and Multiple Sclerosis (MS)
In Brief
Over the past few years, growing experience with the clinical use of LDN demonstrates its consistency in preventing further attacks in people with MS. In addition, a majority of such patients note reductions in spasticity and fatigue. read about LDN here
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Wednesday, September 8, 2010

Listen to Web event with Wheelchair Kamikaze (Marc)
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Sunday, September 5, 2010

Cladribine (en) Cladribin (de)Image via WikipediaMerck's Cladribine Tablets For Multiple Sclerosis Approved In Australia
Merck KGaA announced that the Australian Therapeutic Goods Administration (TGA) has approved Cladribine Tablets for the treatment of relapsing-remitting multiple sclerosis (MS)(1). Cladribine Tablets will be registered in Australia under the trade name Movectro®.
"Approval of Cladribine Tablets in Australia is another step forward here to read article
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Saturday, September 4, 2010

Study Funded by U.S. and Canadian MS Societies Pinpoints Factors That May Contribute To Faster Progression to Secondary Progressive MS : National MS Society
In a study of over 5,000 people with MS, researchers pinpointed motor symptoms at onset (such as muscle stiffness known as spasticity) and male gender as factors associated with a faster progression from relapsing-remitting MS to secondary-progressive MS.
read article here 
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