Friday, May 28, 2010
Wednesday, May 19, 2010
Monday, May 17, 2010
with Dr. Ruth Ann Marrie,
Director of the Winnipeg MS clinic
The Multiple Sclerosis Society of Canada is proud to announce the eighth annual MS Research Teleconference taking place on Thursday, May 27, from 6 to 8 p.m., Eastern Time.
As if having MS weren’t enough, we all need to be aware that it doesn’t protect us from other serious conditions as well. So if you’re having unexplained symptoms, it’s always best to have them checked out.
You should read the whole articlemyelinrepair.org, MS Doesn’t Make Us Immune, May 2010
Cameras scan this repository at the University of Colorado medical campus, protecting the valuables frozen inside: pieces of prostate cancer, fetal stem cells and slices of human brain damaged by multiple sclerosis.
Saturday, May 15, 2010
Friday, May 14, 2010
Thursday, May 13, 2010
Windsor-born Aaron Prentice, 35, says he's doing well after undergoing experimental bone marrow stem cell transplant treatment for multiple sclerosis. Prentice was the last of 24 MS patients to take part in the trial procedure, which was only available in Ottawa. A benefit dinner for Prentice is being held in Windsor on May 23. Photograph by: Handout, The Windsor Star
Wednesday, May 12, 2010
The background of why our company, clinic and laboratory are taking forward screening and treatment of CCSVI may be of interest to many of you.
Make Your Own Cooling Products for MS Heat Intolerance
I had to take action so that I could walk outside to keep up the conversation about how much I suffered in the summer. I donned a neck cooler, armed myself with a damp washcloth and a blue ice pack wrapped in a towel. I actually spent a very comfortable hour out in the heat and now have visions of enjoying picnics and parks--all in the shade, of course.
To stay cool, try these at-home tips:
The Talk Show withhttp://media.cknxradio.com/audio/Talkshow/Talkshow%20Tues.mp3
Bryan Allen with MP Kirsty Duncan talks about MS and "Liberation"
MS Research Accomplishments During Past 10 Years
MS research continues to advance knowledge of the disease and treatment for people with MS. There is much greater understanding of this unpredictable, often disabling disease. Many of those accomplishments have taken place in the past 10 years thanks to the support of the Multiple Sclerosis Society of Canada and its sister national MS societies around the world, many governments and private industry. Here are some key advances:
|Toll free to reach the nearest regional office: 1 800 268-7582|
Multiple Sclerosis Society of Canada
there's 4 of us on this journey, to prague, so we jamede into a rental car. and suzzie, oure GPS guide got us to our doorstep-within walking distance to pretty much everywhere, only...every road is cobbled. i jiggled over them all the first day, butttt, i'm...click here to read more
Sunday, May 9, 2010
Day 4 & 5
Can you believe a neurologist came and saw all of us at the hotel 2 days after our procedure?
I think each person had a different interview. With me, he seemed a little skeptical but was adamant that CCSVI needed to be studied. We had quite a discussion on every MS person getting the treatment and then they can study it to death. He didn't agree or disagree. He seems to be doing his own study now as he was the same person who saw us all before the procedure. He wanted percentages of any changes. I told him my head was...
Click here to read more
Saturday, May 8, 2010
Innate Therapeutics today announced funding support from Fast Forward, LLC, a not-for-profit organization established by the U.S. National Multiple Sclerosis Society and EMD Serono, an affiliate of Merck KGaA, Darmstadt, Germany. The award of funds will help support the conduct of a Phase 2A clinical trial in patients with progressive forms of MS using MIS416, a naturally occurring agent derived from bacteria.
Click here to read more
New announcements on stem cells spark hope for people with MS06 May 2010
Two new announcements have demonstrated the progress being made in using stem cell transplantation to treat MS.
Guidelines for ResearchersThe first is the publication of an international consensus on the future of stem cell transplantation research for people with MS, paving the way for more co-ordinated global research efforts and potentially better, and quicker, patient access to stem cell clinical trials.
The guidelines, which have been written and approved by some of the most well respected international MS researchers, as well as MS Societies from around the world and people affected by MS, spell out hope for the future of MS stem cell research and debunk myths about overseas stem cell clinics claiming to cure the condition.
5/8/2010 7:55 AM
People with multiple sclerosis and their supporters rallied in cities across Canada on Wednesday,
pressing for more funding and research for an unproven treatment for the disease.
The activists, many of whom were in wheelchairs, want researchers to speed up work on the theory
that narrowed neck veins cause blood-borne iron deposits to build up and damage brain cells, and that unblocking the veins will help people with MS.
The notion that chronic cerebrospinal venous insufficiency — or CCSVI, as it's called — causes or
contributes to MS has been put forward by an Italian doctor, Paolo Zamboni. But many neurologists
and others in the medical community are cautious and say that much more study is needed to see if it even plays a role in the disease.
The Multiple Sclerosis Society of Canada has called on the federal government to provide $10 million that would be earmarked for CCSVI research.
About 50 people attended a rally in Toronto outside the Ontario legislature. Among them was Daphne Mansfield, of Brampton, whose husband suffers from MS.
“What brings me here today is my husband, Luciano Vascotto. He’s had MS for 20 years and we have been trying all different things to see if we can get him walking again," she said.
"His left side is gone completely, so we’re hoping one day he’ll be able to have this surgery they are saying could help to unclog the veins, and hopefully he’ll be able to have some use of his left side again.”
In Halifax, about 30 people gathered at the legislature to call on the Nova Scotia government to approve the procedure and provide funding for those seeking testing and treatment.
Christopher Alkenbrack, a 42-year-old former teacher from Wolfville, N.S., said governments should start offering help now, even though the treatment is still in the experimental stage.
"I'm not in a wheelchair yet, but I could be soon if I don't get this procedure done," he said, leaning
heavily on a pair of crutches. "They need to act immediately."
Alkenbrack, who was diagnosed when he was 24, said he was forced to quit his job as a principal in
Quebec six years ago and his health is in decline.
He recently cashed in his RRSPs and is planning to travel to Poland on May 15, where he will receive the treatment. He expects the trip will cost him $15,000.
Nova Scotia Health Minister Maureen MacDonald said the province needs to be sure the risks and the benefits of the treatment are clearly established.
In Edmonton, Mike Phillips was among roughly 50 people — some carrying placards and banners
who gathered in front of the Alberta legislature.
His 23-year-old daughter Crystal recently lost the sight in her left eye because of a major MS relapse and she has started an awareness campaign of her own. Crystal, her family and friends have been wearing a decorated eye patch over their left eye.
"She came up with this idea with a group of her friends that are supporting her so that we can help
raise funds to help those people who can't help themselves and aren't able to go outside the country to get this type of help," Phillips explained.
"I think it's really important that Canada takes an immediate approach to allowing people with MS to at least be tested and then to get the medical people up to speed with these other countries so they can do this procedure."
His family plans to go to India with Crystal and "it's going to cost anywhere from $20,000 to $25,000."
An estimated 55,000 to 75,000 Canadians have MS, which causes symptoms that can include trouble with balance and walking, partial blindness and extreme fatigue.
Zamboni's theory counters the long-held belief that multiple sclerosis is an autoimmune disease, caused by the immune system attacking the myelin sheath that covers nerve tissue. It's not known what triggers that process.
Mansfield said those living with a person who has MS see "the little bits that are taken from them day by day."
Friday, May 7, 2010
Here we are in Katowice, 1 day before my MRV and Eye Exam appointments and 2 days before the big procedure!
Get all of Diane's updates here http://www.thisisms.com/ftopicp-109190.html#109190
We wish Diane all the best in her Journey
Thursday, May 6, 2010
I found this fascinating quote today:
I've been invited to be a guest on "Global CCSVI Radio", a one-hour streaming Internet radio show that will be presented this Saturday, May 8, at 8 PM, New York time. As the name of the show indicates, we'll be discussing CCSVI and my experiences with the Liberation Procedure.The Wheelchair Kamikaze, Wheelchair Kamikaze, May 2010
You should read the whole article.
Wednesday, May 5, 2010
MS Society lobbies government for $10 million for funding into CCSVI and MS researchOttawa, May 5, 2010 – The Multiple Sclerosis Society of Canada is calling on the government to provide $10 million for research into chronic cerebrospinal venous insufficiency (CCSVI) and MS.
Click here read more
Monday, May 3, 2010
I found this fascinating quote today:
Children do notice behaviors. They are smart, and they often see more than we think they do. They also have active imaginations, and the truth may be less scary to them than what they have conjured up to explain behaviors they don’t understand. Your child may not come straight out and ask what’s wrong; it’s up to you to be sensitive to your child’s level of awareness.myelinrepair.org, When and How to Tell Your Child You Have MS, May 2010
You should read the whole article.